Frequently Asked Questions
What is UIC's All of Us Research Program
Why should I join?
If you join, you will be contributing to research that may improve health for everyone. Our goal is to understand what makes people sick and to develop new treatments. Here are some examples of what researchers might be able to discover from their research:
- Better tests to see if people are sick or are at risk of getting sick.
- Better mobile apps to encourage healthy habits.
- Better medicine or information about how much of a medicine is right for each person as an individual.
Also, you will be able to see your information, which might be interesting to you. You may also learn about your health. If you choose, you will be able to share your information with your doctor.
What do I need to do to join?
UIC's All of Us Research Program will begin enrollment in 2017. There are three ways to join:
- Visit the UIC All of Us website joinallofus.uic.edu and if you like, make an appointment to visit one of our enrollment center.
- Call the UIC enrollment center at (312) 996-2778
- Call the Support Center toll free at 1 (844) 842-2855
Because All of Us is a research program, you will be asked to complete an informed consent process. This process tells more about what is involved, and the risks and benefits of joining.
How much of my time will be required to fully participate?
The consent form and health surveys may take about 35-45 minutes to complete. You can complete the consent and surveys online before you come in for a visit – or when you come in for a visit at one of our enrollment centers where we will ask you to provide physical measurements and biospecimens (blood and urine), which will take an additional 20-30 minutes.
Can I talk to someone face-to-face about joining?
Yes. You can talk to a UIC All of Us Research Program representative about your participation in the program at one of our enrollment centers. You can also call the UIC All of Us Support Center to discuss your participation at (312) 996-2778
Is joining a one-time activity or ongoing?
Our plan is that the UIC All of Us Research Program will last at least 10 years. You will receive updates from the national All of Us Research Program. We hope you will stay involved over time. If you do, researchers may better understand what causes changes in our health and what we can do about it.
What will UIC's All of Us Research Program ask of me as a participant over time?
If you decide to join the UIC All of Us Research Program, we will ask you to share different kinds of information. We will ask you basic information like your name and where you live. We will ask you questions about your health, family, home, and work. If you have an electronic health record, we will ask for access. We will ask you to go to a local UIC All of Us enrollment center. At this appointment we will measure your weight, height, hips, and waist, as well as your blood pressure and heart rate. We will ask you to give samples, like blood or urine, at the appointment.
We may contact you to answer additional surveys from time to time. You can choose to answer the surveys or not. We may also contact you periodically to ensure that your contact information is up-to-date in our system.